About me

What I blog about

My Story

It was August 2019.

Join me Friday August 25th as I stream live on Facebook my own adversity while cycling from Milton Ontario Canada to my Fathers resting place in Leith Ontario Canada. *Rain date Saturday June 26th*

And the journey began.  What was a quiet progression, disgustingly sped up. Within months while bed ridden nearing November, my Mother was faced with the reality of not being able to care for Frank as he needed.  So, sparring details Frank had a call from a LTC saying a room was available.  In a tearful and jarring moment; January 22, 2020 Frank was placed on a stretcher, wheeled into the back of an ambulance and removed from his home.  For ever.  

In August 2019 I began documenting the harshness of ALS by way of my social media channels. The raw reality of anguish, freight, loss of dignity and heart breaking events. How it ripped thru my hero’s body without care. How it slowly tore a strip inside my family.

I continue to attempt to break thru the barriers & challenges fighting for all ALS patients in any way I can.  

Add me on Facebook & Instagram, tell all and let’s get something accomplished together.  

“you will be challenged with adversity, in life.  which means troubles.  you have to be strong, work through them, try and understand them, and learn from them”

Follow the Journey on my FB:

https://www.facebook.com/profile.php?id=825820141

Follow the Journey on my IG:

@jeffburnettlive